A review of Black Disability Politics, Sami Schalk, Duke University Press, 2022.

“This is a book written for Black people, especially Black disabled people.” Faced with this strong message in the introduction, the reader cannot help but ask questions. Who wrote this book, and for what purposes? Who shall read it, and to what ends? The author’s answer to the first question is straightforward: Sami Schalk identifies herself as “a fat Black queer disabled woman,” or “a Black person who seeks to avenge the suffering of my ancestors and to earn the respect of future generations.” Her goal is to understand how Black people have addressed disability as a political concern, and to develop Black disability politics as a tool and as a weapon in the fight for recognition and justice. She turns to history “because it benefits us as Black people to know and learn from what our ancestors did, to understand and honor them, and to continue their legacy of finding liberation.” Regarding the second question, the answer is even more blunt: Black readers are welcome. This book was written for them, especially for Black disabled people. As for non-Black persons, they are asked not to intrude into the conversation, for this book is not for or about them. The author makes an exception for “disabled people of color, disabled queer people, and disabled queer people of color”: even if they are not Black, the combination of traits that marginalizes them at multiple levels gives them a seat in the conversation about disability justice and collective liberation. But beware: white disabled persons should not confiscate the conversation, for their advocacy of disability rights has often led to the exclusion of people of color, queer people, or otherwise marginalized persons. Especially if you are white, living with disability does not give you the privilege to speak on behalf of other disabled persons.
A conversation about disability and Blackness
Black Disability Politics starts from the premise that “disability, as an identity, an experience, and a political category, has been conceptualized and approached differently by Black activists and intellectuals than by white activists and intellectuals.” There is something in Black disability that makes it different from disability without qualifier. Black disability has to be understood within the context of white supremacy. Even in the legal and medical sense, Black disabled persons are not equivalent to white disabled ones. Disabilities more common in rich white families are more likely to receive legal and medical recognition, while the types of disability more common in poor and racialized communities may not fit into legal and medical definitions of disability. In addition, “we cannot understand Black disability politics without engaging histories of anti-Black violence, scientific and medical racism, health disparities, health activism and environmental racism.” This makes the fight against ableism align with denunciations of racism, sexism, homophobia, classism, and fatfobia. The author points out “the whiteness and racism of the disability rights movement and disability studies as a field,” which often excludes or alienates Black disabled people. She defines the key principles around which Black disability politics is built: it has to be “intersectional but race centered” (race trumps other factors as it combines with them); not necessarily based on disability identity (unlike the white-dominated disability rights movement); contextualized and historicized (the book presents itself as a first step into that direction); centered on those most impacted by discrimination and injustice (i.e. multiply marginalized disabled people); holistic (the author believes in the “bodymind” literature); and action oriented (“I do not believe in knowledge for the sake of knowledge”). The reason Black disability politics, or the combination of critical race studies and disability studies, didn’t appear sooner as a discipline and as a social movement is because the few voices that have connected disability justice and Black liberation have been consistently ignored, overlooked, or other wise silenced by a white-dominated disability rights’ paradigm.
The book explores how Black people have engaged with disability as a social and political concern through delving into the history of two institutions: the Black Panther Party, or BPP, and the National Black Women’s Health Project, of NBWHP. To many, the Black Panther Party conjures up a hypermasculine image of Black men in leather coats and berets carrying shotguns. Yet for the bulk of its existence, and especially after 1972, the BPP had a majority of women in its membership, and many women featured prominently in its leadership. The BPP had a stated policy of gender equality from its outset, in stark contrast with many leftist groups at the time. While the role of women in the BPP and the Black struggle more broadly has been highlighted by recent scholarship, the same isn’t true of people with disabilities. The same prejudice that identifies Black Panthers with hyper macho men applies to its alleged ableism and neglect of disability rights. Surely a group that advocated armed self-defense and class struggle couldn’t open its ranks broadly to persons impaired in their ability to fight and to parade. Sami Schalk wants to correct this misperception and testify that disabled persons, and disability justice, indeed had a place in the concerns of the Black Panther movement. Exhibit #1 in this rehabilitation trial is a cover story of the weekly newspaper of the BPP dated May 7, 1977, and titled “HANDICAPPED WIN DEMANDS – END H.E.W. OCCUPATION.” The story that unfolds tells the involvement of the BPP in the “504 seat-in,” a nationwide protest in which people with disabilities and their supporters occupied federal buildings in order to push the issuance of long-delayed regulations regarding Section 504 of the Rehabilitation Act of 1973. Based in Oakland, California, the BPP apparently provided support to the San Francisco seat-in in the form of free meals for the 150 people involved and, as the magazine title testifies, a press release. In addition, two BPP members, one of them in a wheelchair, participated in the occupation of the Department of Health, Education and Welfare (HEW) in San Francisco and appeared on the article’s photo illustration.
Exhibits and posters
Exhibit #2 advanced by Sami Schalk to support the Panthers’ Black disability politics is the Panther-supported Oakland Community School’s stated policy of openness and inclusion “regardless of ability, ethnicity, or geographic location” (although the author couldn’t find any evidence that children with disabilities actually attended the school.) Another argument in the defense of the long-neglected disability politics of the Black Panther Party is the fight against the “medical and psychiatric industrial complexes” that made psychiatric abuse in mental and carceral institutions a pressing racial concern. Here again, exhibit #3 is composed of “numerous” press articles (thirteen in total) from the Black Panther weekly magazine that raised issues like forced pharmaceutical treatment, unpaid labor inside mental institutions, physical abuse in nursing homes, and involuntary commitment to state institutions. Another set of newspaper clips (exhibit #4) documents the use of psychiatric drugs in prisons as a means of control, while exhibit #5 consists of denunciations of the return of psychosurgery as a way to mitigate aggression and violence. A trial-within-the-trial, presented as a “praxis interlude,” takes issue with the ableist language and tropes used in some of the Black Panther magazine articles, such as the word vegetable to describe the potential result of psychosurgery and forced pharmaceutical treatment, or the presentation of disability and chronic illness as tragedies in need of prevention and eradication. Here the Black Panther activists are found guilty (“vegetable is used in a clearly ableist way”), but with extenuating circumstances (the term has to be placed “in its historical, medical, and linguistic context”) and they are released on parole provided they will use more proper language (alternative rhetoric and anti-ableist approaches are given.)
The author then turns to the National Black Women’s Health Project, a Black feminist health activist organization started in the early 1980s. Here, the tone is not judicial but celebratory: unlike the mock trial destined to rehabilitate the Black Panther Party’s disability politics from ignorance and neglect, the two chapters devoted to the NBWHP is an exhibition of Black women’s “empowerment through wellness.” Poster #1 in this celebratory exhibition analyzes Black feminist health activism as another prime example of Black disability politics, assessing how disability was explicitly and implicitly included within this collective’s holistic approach to health and wellness. Here the author is faced with a conundrum: she could find very few references to disability (and to the word “feminism”) in publications and internal documents of the NBWHP. But she sees this relative absence as a confirmation that Black disability politics is “intersectional but race centered, not based in disability identity.” Race and gender trump (dis)ability in the affirmation of a collective identity. The NBWHP insisted on the political nature of health and took a holistic approach that included disability in its definition of health and well-being. The self-help groups it organized were neither based in disability identity nor segregated by disability or health status (although they were segregated by race and gender: only Black women could attend.) Its publications addressed a wide variety of health and wellness problems, refusing to stigmatize or shame Black women for their health and promoting wellness for all (in a country where the majority of people don’t have social security.) It insisted on the emotional aspects of wellness and disease, and acknowledged the role of spirituality, faith, and religion in the lives of Black women (Amen to that!). For Sami Schalk, “the NBWHP was not a disability rights organization but a health organization that frequently acted in solidarity with disabled people in much of its work and included disabled people in leadership positions” (like many other health NGOs.)
HIV/AIDS is a disability
Poster #2 gets a little bit more specific on how the NBWHP provided support for people living with disability and chronic disease. The author performs a close analysis of the organization’s work on HIV/AIDS as a disability condition. The organization contributed to awareness and prevention through educational publications and campaigns taking into acount “the reality of Black women’s sexual lives.” It also provided material and emotional support for Black women living with HIV/AIDS (in the form of magazine articles and focus group discussions.) Here Sami Schalk is faced with a similar dilemma as in Poster #1: the programs focused on HIV/AIDS make no mention of disability at all. She nonetheless considers them a valid example of Black disability politics, and for three reasons. A chronic disease like HIV/AIDS is a disability condition, and is recognized as such under the American Disability Act (ADA). Even if a person doesn’t self-identify as disabled, she may be objectively included in the category. The distance or denial taken by some Black communities toward disability (the “Black disability consciousness gap”) can be explained by structural racism and the history of systemic oppression on the part of whites. Even so, the NBWHP is not without blame for keeping silent on HIV/AIDS as a disability issue and for failing to inform AIDS patients that they were eligible for support under the ADA. Again, in this mini-trial, NBWHP is deemed to have benefited from extenuating circumstances (there are “important historical and cultural reasons for that avoidance”) and is left with a prescription to encourage people to openly identify as disabled (even if they don’t have “a piece of paper to prove that”). To show that the lessons of the past are directly connected to the work of the present, Sami Schalk concludes Black Disability Politics by summarizing her interviews with eleven Black disabled activists and cultural workers whom she made provide feedback on the last chapter of her book (they were paid for their time), and four examples of contemporary instantiations of Black disability politics (a website, a book, another website, and another book.)
I feel uncomfortable in commenting this book. As a non-Black, non-disabled, non-academic, non-American, non-native speaker, I have the feeling I am intruding in a place where I don’t belong, and taking part in a conversation without a full understanding of its terms and stakes. And yet, Black Disability Politics is not a community blog or a restricted-access newsletter. It is published in an academic publishing house with an international distribution, its author presents herself as a scholar, and she wants a wide readership as she offers free access to the book through her webpage. I am therefore authorized to offer my five-cents comments for all it’s worth: if someone or something is intruding, it is this book that is trespassing into my favorite academic press series, not me. My first remark is that each time Sami Schalk uses the word Black (and she uses that word a lot), she should specify: Black American. Or maybe African American, or any other term that emphasizes geographical context. The USA is a country where, at any point in time, more than two million people find themselves behind bars; where most people don’t have social insurance; where life expectancy for men is inferior to Iran’s; and where there are more homicides in a day than in Japan during a whole year. African Americans are disproportionately represented in these categories (incarcerated, non-insured, premature deaths, authors or victims of violent crimes.) This situation should inspire shame and a modicum of modesty to all Americans, regardless of race or political persuasion. Viewed from outside, the United States increasingly appears as a country you don’t want to deal with, and definitely not as a country that should give lessons to the rest of the world. Unfortunately, what happens in the US doesn’t stay in the US. The United States influences conversations globally, especially academic conversations or discussions that find their origins on American campuses. What goes around comes around: China’s propaganda apparatus has seemingly become an active supporter of the global Black Lives Matter (BLM) movement – mostly in the form of lambasting the US government and system. In France, conservative forces dismiss any discussion on racial justice or equal opportunity by invoking “wokeness” and the excesses of political correctness observed in the US. As much as Sami Schalk wants to restrict participation in the conversation she is establishing with Black activists and scholars in the United States, I don’t want Black Disability Politics to be part of the conversation about race, disability, and politics in France.
Activism as a vocation
My second remark is that Sami Schalk should take sides more clearly: does she write as a scholar or as an activist? Does she take science or politics as a vocation? The material she presents (what I called exhibits and posters) may be fit for a trial or an exhibition, but cannot pass any academic test in the social sciences. The author recognizes it herself: “Black disability politics refuses to be disciplined,” and breaks away “from the typical disciplinary academic monograph mode.” Mining the past and the present to find heroic ancestors and comrades-in-arms does not a history book make: legacy is not history, and the intention to “exalt,” “honor,” or “avenge” past figures is usually a bad start for writing history books. I personally think African Americans deserve a genuine historical narrative of their relationship with disability, not an hagiography that takes no account of the rules of the discipline. The role of the historian should not be to “draw lessons from the past” but study it as it was. He or she should refrain from two major sins: presentism, or the introduction of present-day ideas and perspectives into depictions or interpretations of the past; and taking the role of the judge, for history is not a courthouse or a trial. She should try to exploit a vast array of sources, including oral testimonies, community documents, and national archives, but she should also apply critical lenses to appreciate the veracity of the sources and not take testimonies at face value. When doing survey research, the important thing is not to obtain a waiver from an institutional review board, but to apply the tools and methods of the social sciences regarding sample selection, baseline or control group, questionnaire design, and textual analysis of responses. If the scholar wants to take the position of the political militant or the social activist (and she is perfectly free to do so), she should specify in each of her interventions in which capacity she is speaking. Readers may find such literature inspiring or uplifting, or they may prefer to turn to other narratives as a source of inspiration. Personally, I still find relief in the statements of Martin Luther King and in his “dream that my four little children will one day live in a nation where they will not be judged by the color of their skin but by the content of their character.”


“We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable Rights, that among these are Life, Liberty and the pursuit of Happiness.” These truths are no longer self-evident: few people now believe in a Creator ; the inclusion of women in the generic term “all men” has to be specified ; and rights in their modern acceptation are not endowed or bestowed, but conquered and defended. What about Life, Liberty and the pursuit of Happiness? Are they not the expression of an American ideology that is shared by few people, even in the United States? Life itself has become a contested issue, as it hinges on when life starts and ends and some people are claiming a right to death in order to exit life with dignity. The pursuit of happiness was a central theme in Hollywood comedies of the 1930s and 1940s—a time of great unhappiness—, but we now look at these black-and-white motion pictures with nostalgia and irony, while Hollywood has moved to other descriptions of people’s aspirations and beliefs. Most significantly, freedom now has a hollow ring. The “Liberty Bell” march or the “Battle Cry of Freedom” were calls to rally round the flag and show patriotism, but these battle songs were used to legitimate wars of aggression and imperialism that made freedom a mockery of justice and equality. Domestically, the “land of the free” has the highest rate of incarceration in the world. We now speak with less assurance than our forefathers about the rights and values enshrined in declarations of independence or bills of rights. What if they were wrong in proclaiming life, liberty and happiness as our guiding principles? What if the reverse was true? What if freedom was not universally desirable, but “ugly” and repulsive? This is the argument that Elisabeth Anker makes in her book Ugly Freedoms, as she invites us to challenge self-evident truths and commonly believed assumptions.
I do not want to brag, but I am in a league of my own when it comes to reading habits. I am not a professional reader, teacher, academic, or publisher, and yet I achieved to read 365 books in 2020—the year of the great lockdown. What started out as a silly gambit on January 1st—my “one-book-a-day” challenge—turned out to be a transformative experience. If “frequent readers” are said to read twelve to forty-five books a year, and “avid readers” read fifty or more books a year, I propose to create the category of “voracious reader” for those who read more than a hundred books per year,
In An Empire of Indifference, Randy Martin makes the argument that a financial logic of risk management underwrites US foreign policy and domestic governance. Securitization, derivatives, hedging, arbitrage, risk, multiplier effect, leverage: these keywords of finance can be applied to the field of war-making and empire-building. The war on terror has created an empire of indifference that distances itself from any particular situation, just like the high finance of Wall Street is unconcerned about the travails of the real economy in Main Street. Finance can help us understand how foreign policy decisions are made, military interventions are planned, and scarce resources are allocated for maximum leverage. As a diplomat trained in economics, I find this angle very stimulating. However, the author approaches it from the perspective of the cultural critic, not as an economist or a political scientist. His book is written on the spur of the moment and oscillates between a denunciation of the war on terror and a conventional analysis of mounting risks in the financial sector. His logic is sloppy at best and his references to finance and economics are unsystematic and clumsy. Even his Marxism is of the literary type: he treats Marx as a shibboleth and a source of metaphors, not as an analytical toolbox or a conceptual guide. In the following lines, I would like to reclaim the impetus of mixing economics, war studies, and finance. But first, let me try to summarize Randy Martin’s argument.
This essay stands at the intersection of black studies, queer theory, and literary criticism and art critique. Its title, None Like Us, is taken from a sentence in David Walker’s Appeal to the Coloured Citizens of the World, arguably the most radical of all anti-slavery documents written in the nineteenth century. The quotation, put on the book’s opening page, describes the wretched condition of coloured people in the United States as observed by the author. It ends with a prayer to God that “none like us ever may live again until time shall be no more.” Who is the “us” that the epigraph dooms to self-extinction and oblivion? Is there a collective subject when humans were treated as objects and disposed of as pieces of property? Can one write the history of people who did not exist, or whose existence is forever predicated on a negative relation to history? How does that “none like us” leave open the possibility for an “I,” the first singular person of the art critic, the historian, the queer subject? As Stephen Best writes, “None Like Us begins in the recognition that there is something impossible about blackness, that to be black is also to participate, of necessity, in a collective undoing.” Whatever blackness or black culture is, it cannot be indexed to a “we.” The condition of being black is rooted in a sense of unbelonging: “forms of negative sociability such as alienation, withdrawal, loneliness, broken intimacy, impossible connection, and failed affinity, situations of being unfit that it has been the great insight of queer theorists to recognize as a condition for living.”
“Property is theft !” declared Pierre-Joseph Proudhon, denouncing the inanity of social institutions undergirding bourgeois society. He was criticized by Karl Marx, who judged the formula self-refuting, and by Marx Stirner, who wrote: “Is the concept ‘theft’ at all possible unless one allows validity to the concept ‘property’? How can one steal if property is not already extant?” Indigenous people face the same set of objections when they claim ownership of the land that has been stolen from them. Their traditional culture and enduring values often emphasize a special connection to land and place. They are the “children of the soil,” “sprung from the land itself” as the word “autochthonous” indicates in its Greek etymology. They can legitimately claim the right of first occupancy and document their collective memory of having been there first. The dispossession of their ancestral lands occurred under conditions that would today be judged unlawful or illegitimate, and that was condemned as such at the time it occurred. But on the other hand, the emphasis on possession and ownership contradicts the values of shared responsibility, stewardship, and common property that many Indigenous people, indeed many persons, associate with land and natural assets. How can one argue that the earth is not to be thought of as property at all, and that it has been stolen from its rightful owners? What does it mean, then, to be dispossessed of something that you never really “had” in the first place, and to reclaim something that was never really “yours” to begin with? Can we make the legitimate claims of Indigenous people compatible with political visions that do not advocate property and ownership at their point of departure?
Anthropology in America at the turn of the twentieth century presents us with a double paradox. Cultural anthropologists wanted to protect Indian traditions from the violent onslaught of settler colonialism, and yet prominent voices among Indian Americans accused them of complicity with the erasure of their beliefs and cultural practices. They thought the culture that African Americans inherited from exile and slavery was not worthy of preservation and should dissolve itself into the American mainstream, and yet African American intellectuals praised them for the recognition of cultural difference that their discipline allowed. As Lee Baker puts it, “African American intellectuals consistently appropriated anthropology to authenticate their culture, while Native American intellectuals consistently rejected anthropology to protect their culture.” What made cultural assimilation the preferred choice in one case, and cultural preservation the best option in the second? How did the twin concepts of race and culture shape the development of anthropology as an academic discipline? In Anthropology and the Racial Politics of Culture, Lee Baker introduces a distinction between in-the-way people, the so-called “Negroes” as black persons were designated and self-identified at the time, and out-of-the-way people, the Native Americans or “Indians” who were relegated to the margins of American society.
Imagine you want to go through a “sex change” or a gender reassignment. People identify you as a man, but you want to be identified as a woman, or vice versa. You may also plan to undergo medical treatment and take hormones or get surgery. What should you and your colleagues do at the workplace to manage this transition? According to the British government that published a guide for employers regarding gender reassignment, transsexual people should take a few days or weeks off at the point of change and return in their new name and gender role. Time off between roles is assumed to give the trans person as well as coworkers time to adjust to the new gender identity. It is usually announced that the trans person will go on a trip, which may be real or figurative; and this journey-out-and-return-home forms the transition narrative that will shape people’s expectations and reactions to the change in gender identity. What happens during this trip needs not be detailed. The journey abroad opens a space of gender indeterminacy that makes transsexuality intelligible within a gender binary. This transition narrative was pioneered by Christine Jorgensen who, in 1953, went to Denmark to get surgery and returned to the United States as a celebrity. As the (undoubtedly sexist) quip had it, Jorgensen “went abroad and came back a broad.”
We think containing the spread of infectious diseases is all about science. In fact, more than we care to admit, our perception of disease contagion is shaped by fictions: blockbuster movies, popular novels, newspaper headlines, and magazine articles. These fictions frame our understanding of emerging viruses and the response we give to global health crises. Call it the outbreak narrative. It follows a formulaic plot that goes through roughly the same steps of emergence in nature or in labs, human infection, transnational contagion, widespread prevalence, medical identification of the virus, epidemiological containment, and final eradication. It features familiar characters: the healthy human carrier, the superspreader, the virus detective, the microbe hunter. It summons mythological figures or supervillains from past history: the poisonous Typhoid Mary from the early twentieth century, the elusive Patient Zero from the HIV/AIDS crisis. Through these fictions, new terms and metaphors have entered our vocabulary: immunodeficiency, false negative, reproductive rate, incubation period, herd immunity, “flattening the curve.” We don’t know the science behind the concepts, but we easily get the picture. Outbreak narratives have consequences: they shape the reaction to the health crisis by leaders and the public, they affect survival rates and contagion routes, they promote or mitigate the stigmatizing of individuals and groups, and they change moral and political economies. It is therefore important to understand the appeal and persistence of the outbreak narrative in order to design more effective and humane responses to the global health crises that lie ahead of us.